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| The official launch took place at The Royal Station Hotel in Hull. From left; Lynda Whincup, Director of Operational Services City Health Partnership CIC; Nicole Woodyatt, Programme Manager for Macmillan Specialist Care at Home; Councillor Mary Glew, Lord Mayor of Kingston upon Hull; Angie Orr, Senior Operations Manager for End of Life Care at City Health Care Partnership CIC and Lady Halifax, President of Macmillan Cancer Support. |
A new approach that improves care for people affected by cancer and other life
limiting conditions at the end of their life has been officially launched in Hull.
City
Health Care Partnership CIC is
working with Macmillan Cancer Support in Hull to trial a model called Macmillan
Specialist Care at Home[i] which
has been rolled out in six locations across the UK[ii].
The
official launch in Hull comes just days after new analysis from Macmillan revealed
people with terminal cancer who don’t receive any kind of health or
social care at home in their last few months of life are more than twice as
likely to die in hospital than at home. This is despite most people with cancer
wanting to die at home[iii]
Pam
Brazier, 61, from Hull is among those to benefit from Macmillan Specialist Care
at Home since patients began being seen last year. Her husband, Tony, was
terminally ill following his second diagnosis of throat cancer, but was able to
spend his final seven weeks at home.
“If I hadn’t had that support, I wouldn’t have coped and Tony would have spent his last days in hospital. The team were like friends and they always said they weren’t just there for Tony, they were there for me as the carer too, and that made such a difference. Even after Tony died, they have stayed in touch and continued to support me.”
Tony
died at home on 11 August 2014 aged 67. The couple had been married since 1984,
and have one daughter, Jolene, now 31.
Based on a Swedish model of advanced
home care, Macmillan Specialist Care at Home in Hull is led by a community-based
speciality doctor working with a team of highly skilled nurses, palliative care
pharmacists and other professionals to provide flexible and personalised care. The team work closely with Hull GPs to
support and empower them to deliver high quality palliative and end of life care.
People affected by cancer and other life limiting conditions are referred for
specialist care at the earliest opportunity and offered as much medical
treatment and support in the home as possible. The team also collaborates with
a range of local health and social care organisations to join up and
co-ordinate the right support for the individual and their family.
The
programme in Hull will run until 2016, at which point an external evaluation
undertaken by academics at Nottingham University’s Sue Ryder Centre will inform
future plans, drawing on the expertise of local hospices in its delivery.
Nicole
Woodyatt, Programme Manager for Macmillan Specialist Care at Home, said: “This
is a great example of how services can work closer together to support people
and families in Hull. It is inspiring to see the determination everyone brings
to this project.”
Angie
Orr, Senior Operations Manager for End of Life Care at City Health Care
Partnership CIC, said: “We are very proud to be one of the six national
partners working with Macmillan Cancer Support to deliver this innovative
approach to specialist and end of life care at home. Improving the quality of
care for patients whose preference is to die at home is something we work
extremely hard to achieve.”
Partners in this new approach are:
Hull Clinical Commissioning Group
Hull and East Yorkshire Hospitals
Hull City Council
Hull Churches
Dove House Hospice
[i] The Macmillan Specialist Care at Home approach originated with the Midhurst Macmillan Specialist Palliative Care service in Sussex, where it was shown that people with cancer and others with complex care needs had a high quality experience of care. More people were able to be cared for and die in their preferred place; emergency admissions and patient stays in hospital were reduced; and the total cost to the health and social care system of caring for people in the last year of life was reduced by 20 per cent. This was found to be the case in an evaluation consisting of two elements: an economic evaluation carried out by Monitor Company Group and a qualitative service evaluation carried out by the Universities of Huddersfield and Sheffield.
More about Macmillan Specialist Care at Home here: http://www.macmillan.org.uk/Aboutus/Healthandsocialcareprofessionals/Macmillansprogrammesandservices/Specialist-care-at-home.aspx
[ii] The six innovation centres are: City Healthcare Partnership CIC (Hull); Earl Mountbatten Hospice (Isle of Wight); West Norfolk Clinical Commissioning Group; Birmingham and Solihull Clinical Commissioning Groups; Mary Stevens Hospice and partners (Dudley, West Midlands); and the North London Hospice (Barnet, Enfield and Haringey, London).
[iii] “Terminal cancer patients with no care at home are more than twice as likely to die in hospital”, Macmillan Cancer Support, January 30 2015.
http://www.macmillan.org.uk/Aboutus/News/Latest_News/Terminalcancerpatientswithnocareathomearemorethantwiceaslikelytodieinhospital.aspx
